Getting #round2 chemo/immuno processed. CBD? Valentine? updated Feb 9, 3am

Saturday, Jan 26  00:30am

Was doing nothing but sitting on sofa yesterday evening, not my habit. Felt tired, but not sleeping way. Went to bed at 22:45 and woke up 00:05, fully awake.
So i got up for a bit ;)
I feel like i have a cold coming on! Catch in hospital?? One nostril closed off too already. Hmm, this is bad right now i think.
Well, i'll try and get some sleep in again now.... we'll see

Ok, got another 3h sleep in, up at 5am. yay
I always said naps are for old people, maybe i should start them.
Or siesta Spanish style :) to not feel old.
Rash on my arms seems a little better.
Lets start the daily drill, and get the pills ready...

18:30 update
Well, that new "drug" is really sucking the energy out of me it seems, but maybe that's a good thing.  Not that i'm sleeping more, still can't sleep, no nap either. But i don't feel like doing anything, can't focus long on anything i start, ...still no pain or other unusual things. So, I'll ride it out for now.

Sunday, Jan 27  00:30am
This is getting to be a regular wake up call.
I need to look into help with sleeping. And i don't want a pill to put me under.
   As i said before, 30y ago i would have gotten some weed. No i don't smoke anymore, not even that i will smoke.
So i will look at the CBD legal way to vape it.
   I will post some links to what i read:
The Ultimate Guide to CBD: Everything You Need to Know About the Miraculous Health Benefits of Cannabidiol 
  4am still awake, still reading....
   This thread is keeping me up, i'll go to bed and try to sleep in a minute 
Small Cell Lung Cancer - Mayo Clinic connect

2nd sleep cycle 04:15 - 06:15 
    Got my usual 4h/night i guess.
Did i mention i had my first little steak since i got diagnosed last night?
    My tumor must be shrinking, i could get things like that to my stomach,              yesterday i tried and it went.            Keep it possitive
    
Ok, make coffee, take the pills, get something for breakfast, look at the CBD some more. I think i'm going to try that

Sunday, but going to rain all day.
Maybe a "try to focus on Android" moment Because i couldn't focus for 5 minutes before, was no use.


Wednesday, Jan 30  06:30am
Didn't post 2 days, was only same stuff over and over, 4h sleep, coffee & cookies, same old.....  Didn't want to get boring ;)
Have been researching CBD more and should get a bottle 1000mg/10ml delivered today. But with this snow, we will see.

I'm not finding a good calculator for CBD in Vape liquid, so maybe i'll be making an app. Starting by putting ideas down, and maybe will make an excel sheet first so i got my formulas working. And know what fields i need and how many.
   Helpers welcome

    So, this morning i woke up at 05:30am, after sleeping 4h straight, yes 01:30 i got to bed. (was actually late because started on app layout idea)

How do i feel?   Pretty good actually,  had a few hard days after Fridays last chemo session, but now totally fine. I have been losing weight, and by the feel of my biceps it's my muscle mass going and fat staying, i don't like it. So, i'll start upper body workouts. Need t ask what doctors say about that today, but doing anyway, so....
ordered  a set

Will be here tomorrow.

It's snowing today, let me show ya my view, i love looking at snow, hate all the rest about it, btw.


It makes for a nice first coffee every time.
All bundled up of course.

Artsie at old age, who knew...




Have to get ready for the day, will probably add some more info in a bit.....

19:00 Got back from the hospital in Roeslerae for the MRI/NMR scan of my brain. Friday i will finally know what my tumor is doing up there. Scary times.
    Good thing my CBD test arrived, i can start trials. I really hope it helps me sleep just a little better. I only slept 6h/night my whole live, having that back would be more than enough for me. *fingers crossed*

I have my first "Medium strenght" test Juice.
Vaped at 2ml/day is really low, so i will start there.
No need to force it, i have been getting 4h straight latest nights.


    - I also want to mention Nathalie Delrue & Marleen from work: Thanks for the message and keeping up with my blog. It really means a lot. ;)

    My Blood test results came back with reasonable values. So, that's good news as well. I know, nothing exciting yet, that will be with the next CT-scan on Feb 12.
and maybe a little Friday from today's scan.
So i will just shut up now and try to eat something....


Thursday, Jan 31  04:00am 

Sleep from 00:00-04:00
    Not like i wanted, guess CBD is not a miracle worker, haha
Just kidding, i know it's going to take a week to start noticing changes.
But, I actually see what is wrong in that piece of Android code that has been bothering me for weeks now. I just opened it now, and actually feel like i understand it like i used too. CBD help my focus? I know not many people actually understand AOSP, Google probably doesn't anymore. So, i'm glad to have that partly back (maybe, we'll see later today when i try and tackle bigger issues).
   Well, i made hot coco, because i felt like that waking up. Not sleepy, so now coffee & cookies time. Lets browse the internet, check mail, keep our mind busy... i hear that's healthy.

Chickens Have Been Modified to Lay Eggs Containing Anti-Cancer Medicine

I have 2 chickens running around in the back, think they would want a trade?

Friday, Feb 01  05:00am 
    Got my usual 4h sleep, awake i am.
First of all: Note to self: Don't forget your wife's birthday today!
    Nothing much special to report yet.
I must say i'm a little anxious to find out yesterday's NMR scan results this afternoon, it's about my brain after all.
The CBD isn't helping much with my sleep yet, but i read everywhere it takes a few days of usage before i will notice if it helps me. Its not a drug, and i started small dosage........
I do notice a better focus already on harder problems, so we will see...

I didn't take anything for that cold i mentioned, and it's getting more present, i must ask about that when in hospital this afternoon.

    Soo, was at the hospital to get the results from my brain scan.
 There is 2 spots that light up, they tell me that means "malicious", but they are fairly small. But they should already respond to the immunotherapy as well, so they want to wait a bit to treat them separately, i agreed. I rather not zap my brain with radiation if not needed. It's really small spots, so the new is kind of positive, no cancer would be better of course. But everyone was expecting worse.
   Going to be watching some relaxing tv now......

Sunday, Feb 03  02:00am
Good morning few readers. (i actually have no idea on numbers, but doing it for myself mostly anyway. When memory goes i want some backup)

Yesterday i had 2h sleep. I did not want to post that here and be boring, rest of the day was not very eventful, so no blog entry. Up at 01:30, hot coco x2, not sleepy, made coffee, stayed up.

Today: went to bed at 22:50 last night, was actually sleepy. Think i slept by 22:55, but of course at 01:15 i am wide awake andsitiing here drinking coco #2 at 02:15. Not feeling the sleep coming on, so i will be making coffee next.
Lets start think what i can spend my day on.
- Upstream bathroom toilet keeps running sometimes, should be an easy fix, it's a geberit system.
- Alex (Ground zero roms) needs some help with that omni weather. Maybe that first, don't want to wake up the wife already
- i can always find some feature to add in validus if i don't know what to do. ;)
- need a to-do list.

    Just thinking about this, if (that is IF) i ever get the green light to work again. Some company should get me as a part time (part time is really all i need now) handy man. I was just thinking what all i am certified to do. --> car mechanics/bodywork, carpenter (A2 diploma), Cisco Certified Network Associate, certified Windows/Linux server system admin / network admin, Computer hardware repair, can drive any truck (better than current instructors i have seen) but probably won't pass medical now, Know my way around somewhat in Android AOSP  development, sure i forget stuff here....


   CBD:
Almost forgot to note what happens in my cbd trial.
* As you can see, for sleep issue, it doesn't do much yet, but i'm told it takes some time. especially at my medium dosage.
* I had a hard time focussing on AOSP issues with larger code changes, if i hit it about an hour before a few times, and then some more during that hour, i really see a better focus and can even fix stuff almost like before.
* I'm feeling more relaxed overall during the day.
* Even feel like fixing stuff, installing new stuff... Already bought new LED lights connected to my network for outside. Need better weather though, doing it now would be stupid in my condition.
*Not going higher CBD dosage for now, i would for the sleeping part because i don't want to take a pill to sleep at any cost. But i don't know how that would react to my other medication. This low level is safe and can not harm anything, so i'll be staying at this average of 30mg/24h CBD for now. Maybe i will change usage to vape a big part an hour before going to bed, to see if that would help.

    Fixed the upstairs toilet this afternoon.
Nothing much to tell, usual calm Sunday, was sunny, so got a few hours sunrays in. ;)

Monday, Feb 04  2am

    Sleep 00:00 - 02:00, wake up, look around in the dark for a reason, hmm, what is that on my back, tap the phone screen to see hour and have some light. 2am, weird feeling on my back, like there is a spot that wants my attention, but on my skin. OK, lets get up and some hot coco, there will be no more sleep...

Doesn't look all that friendly at me.
Hard to take a pic by myself, but not waking up Daisy.






    Google is dropping Google+, Blogger was set to use Google+ for comments, (one of the reasons i chose this platform), so now all previous comments are gone, we have to switch to "embedded comments". Totally unacceptable Goofle!

Wednesday, Feb 06  02am

    Sorry, i didn't post anything yesterday, was same old and still don't want to get boring. Slept 3.5h total, yada yada...
I did think about a CBD app more though. More on that will follow, i have some developers interested....

    Now i slept from 23:00 to 01:00. made me some hot coco again, seems to get me sleepy by 3am, i hope today as well, another 2h sleep would be nice.
    Well lets start an excel template to calculate CBD, so i can work out the calculations needed in the app. And so it begins...

7am, no more sleep added.
Think i have a base-plan for the app. Now need to get active, and get something started.
    Doctor is coming for a blood sample again, i haven't told them about that thing on my back yet. This week was like a week off for me, no hospital appointments, nothing scheduled. next week, i have 4 days there for scan on Tuesday, and then 3 days chemotherapy. I would like to wait, seems better anyway, but i think my wife will throw it on the table, even after i said "please don't"...

Blood sample is OK
For the rest of the day, pretty much no events.
so no boring blog.

Thursday, Feb 07  2am 

Got my 3h sleep already. Got my coco. Now thinking what i can break this night. Better start the coffee i think, i feel active, there will be no added sleep again. Lets continue app layout.
    Found an app on Play Store that updated with a CBD calculator yesterday, but his logic is a little wonky. And he is hard to talk too in English, my German is too rusty to go that way. So, i'm back to making my own.
Base, E-Juice und Liquid Calculator

    Postman rang and this happened

Guys from the Telegram #vapechat i'm in got together and send me this surprise. Enough juice for (my) life.
I can't express my feelings enough over this, it got me a little emotional, even more than when i was told about my cancer.

Thanks Guys!!!

Very special thanks to Ken Greenwood from Drippers n Droppers

for putting it together and shipping to Belgium. I know the struggle.

Friday, Feb 08, 5am

Slept my 3.5 hours, normal.
Have coffee, and cookies....
Need to decide what i'm going to try and do today.

More coffee needed

Rest of the day no noteworthy events.
Boring day, no blog entries needed and scare people.

watched The Voice in the evening. We got some talent, lol
too bed at midnight.

Edit: 1 event i forgot, i actually managed to get a 1h siesta/nap in the afternoon.

Saturday; Feb 09, 3am

yup, up already and have coco & cookies

Also perfect time to charge and setup the wife's Valentines present. New BT speaker for kitchen/outside. My Nexus9 tablet i have going  as media player, ip camera viewer, all round utility ..... the sound isn't all that great from the speaker. This tiny thing should do way better.

Since when am i this sentimental? is it the meds? Valentine? Really? I did that?
CBD doing it?

BTW: i know this is getting to be a long page, but i keep saying to myself "no new event to justify a new one", am i wrong?


Sunday, Feb 10

Nothing much again, usual stuff.

hmmm Revolutionary ‘Trojan horse’ drug has successfully treated British patients