Chemo #3. CT-Scan results are in



I know, been stretching the previous one way too long.
But nothing really noteworthy happened.
Sooooo, we are Monday morning 4:30am.

Of course i will tell you my sleeping time first. 3h so far this night, and looks like it will be all. I'm awake like a spring chicken.

What is happenening medical wise this week.
 * Tomorrow Tuesday morning a CT-Scan to tell us what is going on with the tumor now, and how it reacts to my immuno/chemo therapy. Very anxious about those results. That will probably be by Friday.
 * Wendnesday: at 1pm in hospital, will be a long day. Need to get 6 bags of stuff dripped into my fancy catheter port. Immunotherapy & chemo.
 * Thursday: at 1pm in hospital. Only the chemo. so should be done by 4pm.
 * Friday: at 1pm in hospital. Only the chemo, and discussing the CT-Scan results.......

I'm still testing out the CBD at very low dose. Doesn't help me with my sleeping problem, but i seem to be getting way better focus and feel better all around during the day.  Need to get dosage up a bit, but will not be doing that this week of chemotherapy. ;)
Got another hour of sleep, from 6:15 to 7:15. yay

    Is everyday like a Monday now? Or is it like a Saturday even on Monday now that i can't work? 🤔

Fresh pot'o coffeh brewed, pills ready, lets get started...

This is interesting: Measles Virus Wipes Out Golf-Ball-Sized Cancer Tumor In 36 Hours

Rest off the day is not really interesting.

Tuesday, Feb 12
Went to get a CT-Scan, results will be by end of the week.
Was trying to get some Android stuff done when i got back.

Wednesday, Feb 13  5am
Day of the chemo.
Have to be there at 1pm, going to be a long day.
getting the Immunotherapy and chemo, so will be late by the time it's all
inside of me.
Coffeh is ready, got cookies and a hot Belgian (Suzy) waffle to start the day healthy.

At the hospital, chemo dripping away....
Got an update on the ct-scan from the doctor. Tumor size is way down. So as expected that is good news.
We continue these 3 day chemo sessions 2 more times after this one. 
Then we go to only immunotherapy every 3 weeks.....

Thursday, Feb 14  7am

    Sleep: 6 hours, not all at once but i'm happy.

Well, biggest news yesterday was the CT-Scan result.
Doctors are optimistic to say the least. But that is because the tumor is shrinking fast and they see results. It doesn't really add to my actual
expected lifetime yet.
    Yes, i asked the question straight up as i said i would after the second
CT-Scan. "How long do you expect i can live like a "normal" person?"
The max was till the end of the year when i got diagnosed in December,
and that was already stretching it. Now it would seem like it is still that same point, but wiyh less stretching. They really don't want to put a number on it.
So, i turned into a less straight forward patient, and asked "should i book a summer vacation with the wife?", answer was a pretty fast "yes, of course" from all present. Then i asked "Should i book a ski vacation in December?",
answer took longer and was not really there. Until finally "we will know more after next scans". yea, sure, ok.
    So, these 3 day immuno + chemo sessions will be another 2 times after this one. Then they want to cut out the chemo, and only do the immunotherapy every 3 weeks. The chemo should make the tumor even smaller now, and then the immuno together with my own immune system will keep it there.
That is the plan at least.... (why do i feel like a test dummy)

    Today i only get one chemotherapy so will be quick. Need to be there at 1pm. I expect to be home by 4pm.

   Ah, the thing on my back, the "skin doctor" came take a look, he gave it a fancy name, and said i need to just leave it be, and he will cut the rest out next chemo session in 3 weeks. Simple as that. haha

Saturday; Feb 16  4am

Those 2 days of chemo really got to me. I now understand what others mean when they say chemo sucks the life out of them.
But 4am now, i'm awake, little headache and some weird feelings all over my body, some itching as well on my legs. For the rest i seem to back where i was.

I got 3 weeks to get this sorted, for now only thing scheduled in between is Feb 26, with the skin specialist. he will cut whatever is left from that thing on my back out then.

The hair: well, my wife still says i can't get rid of the rest.
I would have weeks ago, but she still has a hard time with it, and i said she could call it. Here is a pic. Keep in mind it's 4am please ;)







Comments

#diocanaja said…
Keep fighting #partyMarty
JustG said…
Started using CBD myself, not sure why my name never changes, sposed to be Char G 😑✌️
Unknown said…
wow that "Measles Virus" gives lots of hopes. that's amazing if they can go further... almost 2 years and half they figured out...is there a way to get into a "tester program" ? Apparently first 5 patients were in Switzerland; its not "that" far away lol
(Alx31)
Martin Coulon said…
Hi Char,
Welcome to the madhouse.
Martin Coulon said…
yea, i found that interesting as well....
Rick_M said…
Start making those summer vacation plans now 😎
Rick_M said…
Rick _M dunno why it says unknown b/c it knew my email
Martin Coulon said…
google being google...
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